Special Needs Adjacent

Special Needs Adjacent

Here’s to you, sibling(s) of a child with special needs.

Here’s to you and all the different waiting rooms you’ve sat in for hours, waiting for the doctor to finish checking on your brother.

Here’s to the way you defend your sister when you think someone isn’t treating her well because of her needs.

Here’s to you and the way you learn how to help your brother calm down when he’s struggling.

Here’s to your patience as your mom and dad explain that we can’t go to this place or do this thing because your sister isn’t able to deal with the noise or activity or stairs.

Here’s to every time you tried to comfort your mom and dad when they seemed sad after a visit to the doctor.

Here’s to you giving up time with Mommy and Daddy so they can work on exercises with your brother.

Here’s to the way you learn to do things for yourself, because while you are no less loved, you know your parents need to help your sister.

Here’s to you giving up soccer practice so your mom can drive your brother to therapy on time.

Here’s to you as you encourage your brother while he struggles to learn a new skill.

Here’s to you and the way you have cultivated patience and understanding for all types of people with all types of abilities.

Here’s to you, sibling(s) of a special needs kid. You had to learn early on that sometimes life isn’t fair, and that sometimes you have to pull more than your share of the weight. But, with any luck, you also learned that you are a vital part of your family. Not just because of the way you love your sibling, but because of the way your parents love you. Thank you for all that you do.

j-and-j

On Your Fourth Birthday

On Your Fourth Birthday

Dear Joshua,

Happy birthday, big boy! Four is a legit big boy age. I know you’re about 78 on the inside, but four seems pretty old, too!

This year has been huge for you, dude. You have accomplished so much. You can walk on your tippy toes now, and you are rocking the scissor crafts! Bumpy slides, climbing stairs, and riding the therapy peanut have been no match for you as you master them all!

Of course, I think we can all agree that one of the biggest skills you’ve developed is your speech. Joshua, I love you. And you are the chattiest person I know. You ask me what we’re doing, where we’re going, who we’ll see when we get there, and if I remember how much fun we had the last time we were there. I might not remember, but you do. You remember everything. You call a doorbell a “dingbell” and you have a little lisp, so when you say things like “Thanksgiving,” it sounds more like “Skanksgiving.” You’ll probably grow up thinking Thanksgiving is a holiday to celebrate giggling since I laugh every time you say it.

I love to hear the stories you make up. They usually involve Marshall from Paw Patrol and Batman or Captain America, always fighting bad guys. And they always win. You like to tell me which Bible stories you like the best, and even though you still insist Jesus will return to Earth on a rocket ship, I love to hear what you’ve learned about the Bible.

Josh, I just love to see your personality develop. You like to be silly but you do not stand for shenanigans. You like The Rules and you make sure everyone is aware of them. We all know that you’re pretty much raising Jenna at this point, and I do appreciate it. You remember every detail of every conversation we have, and you love to answer questions!

There is a possibility that you’re a tad stubborn, too. In fact, I think you get more stubborn every year. But you know, Joshua, for every moment I am frustrated with you digging your heels in, there is also a moment of admiration for you and the way you fight. You’ve been a fighter from literally the first seconds of your life. You had to be. And while we can butt heads sometimes, I would never change that about you. It’s made you who you are. It’s what kept you with us four years ago.

I know some things are more of a struggle for you. I’m sorry, because I know it isn’t fair. But you don’t let anything get you down. You don’t worry about what other people think of you. You just go out there and do your thing and if someone wants to follow, they can. And they do. Your smile is ridiculously contagious. Sometimes I know you’re up to no good and then you look over and grin at me, and I have to smile back.

Remember when you broke your arm? We didn’t even know it was broken for two weeks. Because you’re half human, half superhero. And you rocked that neon green cast.

Joshua, I want you to know how much I love you. And how much I admire you. You have accomplished more in your four years than some grown people ever will. You’ve had to work harder for every little victory, and you’ve had to struggle over the small things. Part of me is sad about that. But part of me know that it has shaped you into an incredible person who never stops trying. Your work ethic is better than mine, kid. And you have compassion for so many people in different situations. You’ve learned about different disabilities and struggles, and it’s made your heart even bigger. You love to love people.

Happy, happy, happy, happy birthday to my big little man, who always has a smile and a reminder about using our indoor voices. I hope this next year is just as great.

Love always,

Mommy

Today’s the Day

Today’s the Day

Once upon a time, there was a woman who lived in the merry lands of Georgia. She had a lovely life, with a husband who loved her, and whom she loved, and two children whom she only rarely considered selling on eBay. She spent her days raising these children, and providing mediocre meals for her husband, and writing on a giant whiteboard calendar that she made herself in spite of her inability to craft. And it was a good life.

But the woman wanted to do just one thing more: She wanted to be healthy. Not, like, to run a marathon, because that sounded terrible. More like healthy enough to live a long life and set a good example for her children.

The woman tried lots of different ways to make this work. She took advice from trusted friends, and tried various programs that had been proven to work. And sometimes they did. The woman would always start out strong, and she would slowly become healthier. But life, as it so often does, would get in the way, and the woman would have to miss a weigh-in or stop by a drive-through. When that happened, the woman felt like she had failed. And if she had already failed, what was the point of continuing?

When she failed, the woman was ashamed. She was angry at herself for not working harder to stick to a plan that she had promised to finish. She was sad that she had disappointed herself and others, especially her husband and kids. She was embarrassed that she had let herself become so unhealthy to begin with, regardless of the reasons. She did not want to tell her friends and family that she was trying to be healthier, because she did not want them to watch her struggle and fail.

One day – probably a Tuesday – the woman found herself sitting on her couch at home. She had spent so much time researching the best ways to be healthy, and joined all the right groups on the Facebook, and became a gym member, and yet, she was no healthier than before. She was a few pounds lighter, but she knew she had such a long way to go. And as she sat on her couch, she wondered where it all went wrong. Why wasn’t she motivated to do anything to become and stay healthy?

That was really the heart of her issue: She wasn’t motivated. Because she didn’t believe anything would work. Life, though still a blessing, had beaten down the woman’s spirit over the last few years. She wanted to be strong and joyful, but it was just too hard when something went wrong. She had taken the hopefulness and positivity that was once part of her and slowly put it away. Oh, she could get to it when she wanted to, but she found those instances were fewer and farther between. And the more she put away, the less she wanted to find it again. And so it went.

As the woman sat on her couch, lamenting the woes of her life, she found a picture of herself from long ago. Well, it was really only about six years ago, but the woman was going for a dramatic effect in her story. The picture showed a man and woman on their wedding day. They were, of course, dressed up; he looking so handsome, and she so beautiful. But it wasn’t their clothes or their weight or her makeup or the lighting that made them look this way.

It was their absolute joy.

And as the woman looked at the photo some more, she wondered if, maybe, she could have that joy again. She knew it wouldn’t just come back right away. But if she believed it would return, it would.

That was the key to her struggles the whole time. Every weight-loss program, every announcement of giving up sugar, every promise to make it to the gym four times a week  – she had never believed she could do any of it. And after she tired of going through the motions, she stopped.

So the woman made a decision. She decided to believe that she could become healthier. Not to fit into a certain size or wear a special outfit, but to prove to herself that she could. And to prove to her own daughter that she could. And to finally feel the joy that she had contained for years.

The woman knew that, ultimately, no number on a scale would bring her the joy she sought. She knew that her ultimate identity was found in Jesus, and from there she was so much more than a certain weight or measurement. But she also knew that this was the right step to take, both for herself, and for her children. And she believed she could take it. No special classes or outrageous goals or shame if she stumbled. Just belief that she could take the first step. And then the next. And then the next. And then the rest.

So she did.

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